Terri L. Wilder, MSW is a social worker and activist for the rights of people living with myalgic encephalomyelitis (ME), Long COVID, and HIV. She has worked in public health since 1989 providing social services, coordinating education for clients and medical providers, managing volunteer-led programs, and advocating for policy change. She has presented at local, national, and international conferences on a variety of health topics. Terri was diagnosed with ME in March 2016. Since her diagnosis she has worked with elected officials, public health departments, health care providers, and activists to raise awareness and change policy across the globe. She was finishing her PhD in Sociology at Georgia State University when she became ill; however believes she has had the disease since 1996. She has years of experience working with #MEAction and has represented the organization on the federal Chronic Fatigue Syndrome Advisory Committee (CFSAC), and during NIH, CDC, and HHS meetings. She uses the skills she learned from the HIV movement and the LGBTQ+ community to fight for the ME and Long COVID community. Terri served as the co-leader of #MEAction New York for several years and is currently the chair of #MEAction Minnesota
